Katherine’s story with Neurofibromatosis Type 1
Neurofibromatosis Type 1 affects thousands, but too few know what it is. Katherine shares what it’s like to live with a rare condition that’s often invisible to others, but impossible to ignore. This is more than a diagnosis, it’s a call for awareness, empathy, and visibility.
By Isobelle Castro
31 May 2025

Katherine lives with Neurofibromatosis Type 1 (NF1), a rare genetic condition that causes tumours to grow on nerves throughout the body. She shares the realities of living with an often invisible illness and how she overcomes them. Hear her powerful story of strength, resilience, and self-acceptance.

Read the full article here.

Image: Katherine Buckley

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