Sheffield Epilepsy Action (SEA)  launched their ‘Without Limits’ six-year strategy this week, targeted at improving the standard of living for sufferers, raising awareness of the condition, and improving access to support.

According to Epilepsy Action research, 630,000 people have epilepsy in the UK, with approximately 80 people diagnosed each day. 

Emily Stanley, Epilepsy Action’s Media Officer, from Leeds, said: “A diagnosis of epilepsy can be very daunting and often leaves people feeling anxious and isolated.

“I have felt so inspired by the charity to really advocate for greater recognition of epilepsy. Every person with epilepsy deserves to feel supported and reassured.”

Epilepsy is a condition that affects the brain by causing repeated seizures, with some types being short term, but for the majority, it is a life-long condition. 

SEA sets out guidance tailored to the needs of epilepsy sufferers, including support in navigating driving, education, safety, relationships and work. 

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A 66-year-old man from Sheffield, who developed temporal lobe epilepsy in his mid 20s, said: “As soon as you mention epilepsy you can see the look on the people’s faces that says it all.

“The trouble with epilepsy is that it’s invisible, if you look at me there doesn’t seem to be anything wrong with me even though I have epilepsy,” he said.

The organisation raised £2.7M in 2023 through charity events including marathons.

This money goes directly towards supporting those who are affected by the condition.

An individual with epilepsy from SEA said: “I went from not being able to take the trash down, to going out, not only with my friends but by myself. It’s as if I’ve found my old self again.”

The charity continues to raise awareness about epilepsy and enforce support for people living with the condition.

For support, or to find out more about epilepsy, visit the Epilepsy Action site.