{"id":1601,"date":"2025-06-03T15:58:26","date_gmt":"2025-06-03T14:58:26","guid":{"rendered":"https:\/\/radiancemag.co.uk\/?p=1601"},"modified":"2025-06-04T17:39:03","modified_gmt":"2025-06-04T16:39:03","slug":"my-rare-skin-condition-helped-me-find-purpose-eileens-ichthyosis-story","status":"publish","type":"post","link":"https:\/\/jusmedia.co.uk\/radiancemag\/2025\/06\/03\/my-rare-skin-condition-helped-me-find-purpose-eileens-ichthyosis-story\/","title":{"rendered":"‘My rare skin condition helped me find purpose’: Eileen’s Ichthyosis Story"},"content":{"rendered":"\n

Once super shy because of a rare genetic condition, Eileen Uthuppan is now having her main character moment and using her voice to #represent young people like her. She’s teamed up with big brands like Cetaphil and Neutrogena, and even launched her own magazine to spread awareness and confidence worldwide.<\/strong><\/p>\n\n\n\n

Eileen, 23, is one of a small population suffering with a sub-type of ichthyosis, a severe skin condition. Lamellar Ichthyosis is only seen in every 1 in 200,000 new-borns,<\/a> according to the British Skin Foundation.<\/p>\n\n\n\n

Eileen says sharing her story with others through her ‘SkinRare’ magazine helped her find a purpose.<\/p>\n\n\n\n

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A post shared by SKINRARE Magazine (@skinrare.mag)<\/a><\/p><\/div><\/blockquote>\n